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Hi Tribe,
My name is Jane, I've known that I had HepC geno type 1a since back November 2005. How or how long I've had this is un-important. I started treatment of Pegasys & Copegus on Sunday May 21, 2006. I kinda stumped apond this group back in November 2005 among many other HepC support group sites. In fact I started a forum of my own. I must say that this group is among the best I have been reading since November. You all have such great attitudes and I truely believe "attitude" is an important role in dealing with this. So, you may ask, Why have I been sitting back on the sidelines before now? Good question, but I haven't a clue as to why I've been silent! Today thought, I'm changing all that. My viral load back in November was 969,000. Last night was week 8. Eight down, forty to go. On June 19th after 4 weeks of treatment another viral load was taken, today I just got back from my doc, he said that viral load showed non-detectable! I haven't had any real bad sides, infact almost zip zero sides. Secretly, I was scared that the meds wasn't doing anything. Oh, I've had some brain-fog but I've had some of that before treatment, I've had some slight depression, my self medication that cures that is to blow it off and get busy so I don't have time to think about it, a few aches & pains here & there, nothing to get excited over. Sherrill, my oldest daughter is named Sherrill spelled the same way as yours & I loved your hair or no hair that I also cut all my locks off too. It was time to get real with myself, I just didn't want to fuss with my hair anymore, besides it's not about looking fabulous to anyone anymore, besides now I can truely wash & go! Brock, so many times you have had me actually "pimp" (peeing in my pants), you are so humorous, and Beverly you are one smart cookie! You all are just a great bunch of folks! Thanks!
Catfish
My name is Jane, I've known that I had HepC geno type 1a since back November 2005. How or how long I've had this is un-important. I started treatment of Pegasys & Copegus on Sunday May 21, 2006. I kinda stumped apond this group back in November 2005 among many other HepC support group sites. In fact I started a forum of my own. I must say that this group is among the best I have been reading since November. You all have such great attitudes and I truely believe "attitude" is an important role in dealing with this. So, you may ask, Why have I been sitting back on the sidelines before now? Good question, but I haven't a clue as to why I've been silent! Today thought, I'm changing all that. My viral load back in November was 969,000. Last night was week 8. Eight down, forty to go. On June 19th after 4 weeks of treatment another viral load was taken, today I just got back from my doc, he said that viral load showed non-detectable! I haven't had any real bad sides, infact almost zip zero sides. Secretly, I was scared that the meds wasn't doing anything. Oh, I've had some brain-fog but I've had some of that before treatment, I've had some slight depression, my self medication that cures that is to blow it off and get busy so I don't have time to think about it, a few aches & pains here & there, nothing to get excited over. Sherrill, my oldest daughter is named Sherrill spelled the same way as yours & I loved your hair or no hair that I also cut all my locks off too. It was time to get real with myself, I just didn't want to fuss with my hair anymore, besides it's not about looking fabulous to anyone anymore, besides now I can truely wash & go! Brock, so many times you have had me actually "pimp" (peeing in my pants), you are so humorous, and Beverly you are one smart cookie! You all are just a great bunch of folks! Thanks!
Catfish
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Atlanta
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Re: Kinda New-Kinda Not
Mon, July 10, 2006 - 4:31 PMSounds like you will be a great addition to our happy bunch here, not happy that were here, just happy to be more clear about life in general. You should fit right in Jane. Welcome. -
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Re: Kinda New-Kinda Not
Mon, July 10, 2006 - 9:46 PMI guess the real question is, would your cat eat a catfish?
I bet you almost peed your pants when you leapt for joy after get that viral load result back. You are a mom...
I'm delighted you have decided to come out of hiding and join us. Everyone here is great and everyone has contributed something to my treatment experience and treatment recovery. Lots of wisdom.
I had a pretty smooth ride, and who knows, maybe you will also. Partially because I *was* almost always symptomatic so the basic tiredness, flu, etc. was just another day in the park for me. Except the psych stuff, that kicked my bazooka, especially for those last 6 weeks. I would have caught and killed a catfish just because I didn't like the color of it's fin.
Welcome, Bev -
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Re: Kinda New-Kinda Not
Mon, July 10, 2006 - 10:18 PMhey Catfish do you feed them catfish that dog food looking stuff? My great aunt had a catfish pond before she moved to CO.
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Re: Kinda New-Kinda Not
Sat, July 15, 2006 - 7:15 PMSorry to have finally posted then poof. I was one of those weeks. LOL, I don't own any cats just dogs, they are a humans best friend indeed. Yup I almost pimps at the doctors office. Yes I am a mom of a 33 female, a 28 female & a 21 male, a 13 grandson & a 11 grand-daughter. My 28 & 21 don't want any children. I suppose if I had a cat it would learn to love catfish!
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Re: Kinda New-Kinda Not
Tue, July 11, 2006 - 2:41 PMWelcome Jane, always melancholy to welcome a newbie but indeed this is the place to be, fabulous group of crazies here, if its attitude you need, we have a boat load.
Thats so rare for anyone to have a spelling like mine, always said my father wanted a son, its a boys spelling of the name. How old is your daughter,? mine just turned 18 and what a slippery slope its been getting her to this age, lol.
Yes indeed I was so glad to have the hair gone, too strung out to care for it and to much anxiety associated with watching it fall out. Of course now I am seeing if I can get a few inches to grow in before winter and my current 1 1/2 inches I look like a boognish.
I am 26 weeks into treatment and overall its not too bad though often relative to each individual hour. What this group has that I so appreciate is a fabulous sense of humor and a grasp on the absurd.
Brocks in a class by himself and duck when Bev fires a spit ball, come back early and often and these cards will keep you light and fluffy through treatment and beyond.
Catfish, thats quite a handle, story go with it? honey you are going to settle in here just fine.
My prayers are with you, and congrats on the "0" count, wooooo, hooooo another dragon slayer in our midst... -
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Re: Kinda New-Kinda Not
Tue, July 11, 2006 - 9:20 PMSherrill, thanks for the compliment.
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Re: Kinda New-Kinda Not
Wed, July 12, 2006 - 12:47 PMcredit where credit is due to our resident goddess, Bev, from whom the most brutally honest, poignantly blessed and always endearing words of wisdom come from
love ya girl.... -
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Re: Kinda New-Kinda Not
Wed, July 12, 2006 - 5:40 PMI think the world of you too Bev, you and Stan were the first two people to reply to my first post here on tribe. -
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Re: Kinda New-Kinda Not
Wed, July 12, 2006 - 6:10 PMBut Brock, what about meeeee? Just kidding.
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Re: Kinda New-Kinda Not
Sat, July 15, 2006 - 7:31 PMShe is 33, my mother named her. After I had seen how my mother spelled it, I said great that will show the world I fluck at spelling! LOL........Life is good without all the hair, I just toss on my baseball cap & go. If anyone looks at me funny like whatz up with that I just look back at'em like wtf you looking at! Bev fires spit balls? Just as long as it's not lugers we'll get along fine! LOL........CountryFriedCatfish came from a Northern friend of mine. I'm about as "Country" as they come. In a friendly heat arguement with this friend oneday I was so pissed I called him a MF and that's not Maryland Farmer, he was so shocked he studdered and out came CountryFriedCatfish. From that day on I'm know as CountryFriedCatfish and now we call him Maryland Farmer. He's from Jersey and about as headstrong as they come! He's a great friend! I would have used a catfish pic but decided I should use a more gentler pic instead.
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Re: Kinda New-Kinda Not
Mon, July 17, 2006 - 11:31 AMHappy belated welcome! It's great that you are so positive. We all have our ups and downs and that's why I think it's so important to keep in touch! I was taken off treatment because of my immune system but I hope to get back on soon, maybe next year. At 8 weeks my viral load went from 3mil. to 0-so we know it works, just gotta keep that immune system up. Maybe if I cut off my hair too............. lol :) -
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Re: Kinda New-Kinda Not
Mon, July 17, 2006 - 11:48 AMIs this what the Loma Linda doctors said?
>>I hope to get back on soon, maybe next year. At 8 weeks my viral load went from 3mil. to 0-so we know it works<<
They say you have to wait for your immune system to repair itself?
Just curious so I can be medically correct should the topic ever come up again. -
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Re: Kinda New-Kinda Not
Mon, July 17, 2006 - 12:56 PM<<They say you have to wait for your immune system to repair itself?>>
yes I don't really understand that either, they have a dozen drugs out there now that they give all sorts of chemo patients that bump up the immune system while on chemo, they covered all of them in the silly little class Kaiser makes you take before treatment. They even gave me a list of them at one point to take to my primary in case my counts dropped as my GI doc is just too far away and too hard to get in to. Yet I have heard of all number of people getting booted off treatment for immune disorder issues, seems a little odd. -
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Re: Kinda New-Kinda Not
Wed, July 19, 2006 - 1:33 PMI AGREE!!!!! I just don't understand why, if I was getting soooooo many infections due to a poor immune system they couldn't just give me immune boosters....... I don't get it either!!!! That's why i want to go to Loma Linda, maybe with all this they'll be smart to just put me on immunoglobulans instead of referring me to a shrink for sleep disorder!! DUH!! The treatment was making me not sleep!! Doctors can be such idiots sometimes, most the time.
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Re: Kinda New-Kinda Not
Wed, July 19, 2006 - 1:29 PMNo I haven't seen the loma Dr's yet, just need to get around to it. My regular Gastro. Dr. told me to hold off on treatment till my immune system gets back on track because I was getting so many illnesses. The Ulcer caused me to not eat for 4 days, I was down from 120- 107 and just had infection after infection- you name it, I got it. I just didn;t have any strength anymore so he wants to wait till I am healthy again. It was actually more frustrating for him cause he wanted to start back on right away given my response but the infect. disease Dr. called him and told him he thought it better to wait till I was strong again. So basically have to start all over.....What was it he said "it's not a sprint, but a marathon". I'd rather sprint and get it over with! :) -
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Re: Kinda New-Kinda Not
Wed, July 19, 2006 - 3:24 PMA belated hello Kinda new kinda not. Can I call you KnKn? Congrats of the negative result and your hair will return. i'm six months post treatment and it's almost back to normal.
Sher, I have an 18yr old daughter too. Fun are they not? ha! -
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Re: Kinda New-Kinda Not
Thu, July 20, 2006 - 5:53 PMgrowing the hair back will be an adventure, mines about 1 1/2 inch long and every day i debate to keep going/growing or just shave it again it was so liberating.
yes tracy, my 18 yr old is too a new adventure every day, I went through a really terrible and difficult 5 yrs with her though, and I exhale a bit each day now as she is moving into maturity, its all very surreal actually
hep c has actually been a breeze in comparison to parenting a whirling dervish, lol. -
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Re: Kinda New-Kinda Not
Fri, July 21, 2006 - 3:42 AMMine's a whirling dervish too Sher. Bit like watching myself grow up.
I see signs of maturity now and then...very surreal.
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