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Hi I'm Kathy, found this site from another one...nice! Are there any other Floridians here? We are having a FL Hep Fest Labor Day weekend and would like to welcome all.
A little about me, I'm 50, grade 3/stage 2 biopsy, did 48 weeks of Scherring treatment and am now 4 years clear.
A little about me, I'm 50, grade 3/stage 2 biopsy, did 48 weeks of Scherring treatment and am now 4 years clear.
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Re: New from Florida
Fri, June 16, 2006 - 2:58 PMWelcome Kathy, very cool your clear, several of us here on treatment right now, me 22 weeks so far, as you can see by my lovely bald locks, so good to hear the success stories... -
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Re: New from Florida
Fri, June 16, 2006 - 8:23 PMKathy, welcome. 4 years clear. May I kiss the hem of your garment?
How long did it take you to feel better after you finished? Did you have any long standing sx or still any?
There is someone on this tribe from FLA but she is so busy living a full and fabulous life that she doesn't post much. People like her, living well with the illness, and people in tx like Sherrill, coping with tx, and people like you with a svr, the presence of all of you really keeps me going. I'm 4 months finished tx, 3 month test svr, starting to feel better but my head is still squirrely and I am still tah-red. -
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Re: New from Florida
Sat, June 17, 2006 - 6:34 AMHi Kathy
Welcome..It's always so good to hear from people who have had a svr for that long, gives everyone a little lift. I finished treatment in December last year and my 3 month pcr was negative, just starting to think about getting my six month one done. I'm not from Florida but am so jealous that you live there.
Beverly, that's just how I am at the mo...feeling better but still tah-red.
Great to hear from you Kathy
Tracey -
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Re: New from Florida
Sat, June 17, 2006 - 7:09 AMHep fest sounds like fun. Do you know the lady who owns "HepCMatch"? -
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Re: New from Florida
Sun, June 18, 2006 - 9:04 PMThe site sounds familiar. I have met so many through the years. Alot of people are going to do the fest from other states, getting their vacation in at the same time....last weekend of the summer. I know Pam from HepCingles do you know her? She is a great advocate and I got the opportunity to meet her at the March on DC for HCV Awareness last year. Nice warm group of people here, glad I found ya's.
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Re: New from Florida
Sun, June 18, 2006 - 9:02 PMHey Tracey come on down and visit. I love it here. I remember waiting for those results, felt like all I did was test and wait for results. Did you clear at 12 weeks? Nice to meet ya.
Kathy
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Re: New from Florida
Sun, June 18, 2006 - 9:01 PMI was so anemic at the end of tx that I swear it took me a good year and a half to feel somewhat normal again. I still get brain farts but not sure if its post tx stuff or if its my age. I think I'll still blame the tx (wink). Some people stay around to give some back, which is my case, but I have seen tons of people get what they need and then disappear. I got alot from the internet when I was first diagnosed and during tx, so I stay to give something back. Thanks for a the warm welcome! -
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Re: New from Florida
Sun, June 18, 2006 - 9:12 PMKathy, I did the same thing. I got lots of info and got hooked up with the hcv community here in sf. It really made a difference. I've just signed on to be hcv education coordinator at the place where they held the seminars and group and I'll be 'working' the hcv national conference that will be here in July. It's volunteer and I'm way to tired and in over my head and what do I know about health care and non-profit and fund raising and all that and people keep saying things like, oh you know Dr. Smith, when no, I don't. But through these contacts I was able to get 24 weeks of interferon/ribaviron for free and the day I picked it up I vowed that I would offer to volunteer at the clinic and wouldn't you know, they asked me first. So, I think I'm doing the right thing but I'm freaking out and the brain farts aren't helping.
Is anyone in this tribe coming to the conference?
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Re: New from Florida
Wed, June 21, 2006 - 9:54 AMWow- that's so wonderful that your clear!!! And welcome to the tribe!!! That's so cool they have a Hep. Fest in your area- wish we had more available where I am!!
