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I begin week #37 of treatment tonight. Doing fine. Ive been getting out around people more lately and it certainly is a challenge not to reveal too much about myself by complaining about the meds or making excuses about why I'm just not right. So I'm learning some new non-selfish social skills and asking people about themselves and how they are doing and in general keeping the focus off of myself.
I will have some new pics to post later today. Hows everybody doing?
I will have some new pics to post later today. Hows everybody doing?
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Re: Hi Everybody
Wed, June 14, 2006 - 5:48 AMHi Brock and everyone
On holiday in Italy at the moment, In Florence today, Very hot, very nice, Hope everyone is doing ok and catch up with you al when I get back
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Re: Hi Everybody
Wed, June 14, 2006 - 7:52 AMgood for you Brock, you will have to send me some tips on how to get back into the world, at week 22 I have become a full on hermit, which is not recommended for my outgoing nature but I am not fit for public consumption..
Ok, Tracy, well you just have a fabulous time for all of us sounds so wonderful....
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Re: Hi Everybody
Wed, June 14, 2006 - 8:59 AMWill it sound weird to say that I am jealous you are in week #37...??? Your so close to being done, I am wishing I could have continued on. Starting to have regrets about the docs stopping it!!
That is so great that you are out and about, it'll not only help keep your spirits up when you are so close to being done but also help when you are off treatment. Keep on truckin'!!
Like I said- geeting upset that I can't go on with treatment, I've lost alot of hair already so when they do decide to out me back on I know I'll lose it all, just have to train myself to prepare for it. I know it sounds trite but can't help it. Then all this thinking stresses me out more!! You'd think I was still medicated!!! Keeping busy with work, summer school and kids. My step son will be moving in with us shortly, maybe that's why everyhing happened the way it did... The "powers that be" knew what was coming and that I'd have to get myself healthy above all else, even if that means stopping treatment.
The funny thing is I really do take care of myself, everyone keeps telling me "you have to take care of yourself to keep your immune system up" I have no idea what else to do...
I eat ok, no junk food, take my vits, exercise when I feel good enough to, try to rest as much as possible, no alcohol (except for the one drink on my b-day) I keep my caffeine intake to only 2 cups of coffe per week, etc.....
Sorry to ramble on, just frustrated!!!! Love your pics Brock, I need to learn how to post mine.... -
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Re: Hi Everybody
Wed, June 14, 2006 - 7:14 PMTiffany, don't underestimate the power of Ribaviron. I'm four months out of treatment and still have some head stuff, although I'm alot better. Yes, I hate it when people tell me to take care of myself too, but not as much as I hate it when people say, 'i know you hate it when they say that, but they mean well...' yada yada yada. I'm not a victim, I'm not an idiot, I'm not a child, I don't need to be told what to do however subtle the judgement is. It just reinforces the myth that if only we manage well, we won't be sick. Self-care does tons but not everything. A simple, take care kiddo, is enough for me. Oh, and don't tell me 'you look terrible'. I heard it all day yesterday. I wanted to reply to each person, men included, yes, well, I just got my period and it's really heavy and I have terrible cramps etc. -
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Re: Hi Everybody
Thu, June 15, 2006 - 7:31 AM>>Love your pics Brock, I need to learn how to post mine<<
I hope you learn how to do it soon, I'd love to see what you look like Tiffany!
Bev, - Thanks for the laugh today, your great.
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Re: Hi Everybody
Thu, June 15, 2006 - 11:33 AMI think that's what I should say to everyone!! that's funny, Bev.! -
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Re: Hi Everybody
Mon, July 24, 2006 - 3:06 PMBoy, this tribes been sleepy the last couple of days, glad Tiffany broke the silence today. Chip is getting a liver biopsi soon so I wanted to share what that was like for me. The local anesthetic didnt hurt, but when the doc put that long needle thing between my ribs and deep into my guts, their was a sharp stabbing pain for a couple of seconds, then it was over. But then I had to lay on my side for four hours and that sucked, I was uncomfortable by the end to say the least.
Antbody else want to share what that was like and what kind of things the doctors can tell from the results? -
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Re: Hi Everybody
Tue, July 25, 2006 - 1:20 AMHi...Yep, my biopsy was completely painless. he worst part was the worrying about it and the lying around afterwards and not forgetting that cheese and tomato sandwich they gave me about 6 hours later (how can they class that as food? do they want people to die?)
I di find out from the biopsy that I have quite extensive scarring but not chirosis (spelt wrongly, never can get that one) I have heard of a fibrosure test but don't know what that involves? I know that biopsy's are vital in giving information about your liver.
Yep, mine was ok.
It's just been so unusually hot here in UK that we've all gone to sleep. What's your excuses? :>)
Tracey
Tracey -
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Re: Hi Everybody
Tue, July 25, 2006 - 1:24 AMWish there was an edit button.. sorry about mistakes.....late for work....even later now..Oh dear.................................... -
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Re: Hi Everybody
Tue, July 25, 2006 - 3:38 AMGlad to hear your getting out and about and back working too Brock! My biospy went well also. -
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Re: Hi Everybody
Tue, July 25, 2006 - 7:14 AMTracey, if you use your back button on your browser, that allows for edits. -
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This is the maximum depth. Additional responses will not be threaded.
Re: Hi Everybody
Tue, July 25, 2006 - 10:31 AMThanks for that Beverly. You know what it's like, you think 'I'll just write this quickly' and then notice all the cock ups.
Cheers for that vital info.
Hope you had a good day.
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Re: Hi Everybody
Tue, July 25, 2006 - 1:45 PMOOOHHHHH the Liver Biopsy!!!!! Mine was aweful!!!! Overall, as the doctors say, they are not that bad. However while the watching the insertion of the probe into your body and the "click" of the extraction of your internal organ, it was tolerable, in fact the nurses said I handled it like a champ without even any muscle relaxers, which I found out later they are typically supposed to give you. BUT during the second extraction I felt that sharp pain, he had hit a rib. Ok- it's finally over, I am fine and conversing with nurses when all the sudden I start feeling a slight muscle cramp in my right shoulder, nothing at first, then as the minutes tick by it slowley gets worse and worse and so bad I am in tears. The doctor had also hit my Phrenic nerve (I was later told this is fairly common). Now I've given birth naturally so I know pain- the phrenic nerve was damn near comparable. Long story short-if they hit the nerve ask for IV pain killers since they will have already inserted the iv before the procedure. 2 oral vicodens on an 8 hour empty stomach may land you in the ER, as it did me..... Sorry to scare anyone, but it's a true story!
As for results- they'll be able to see what damage has been done so far and what stage of fibrosis you are in, good information to know. I'm in early stage 2. If I am remembering correctly there are 3 stages of Fibrosis before cihrrosis, but I could be wrong.. Good news is fibrosis can be stopped and in some cases "repaired".
That's why I say- no smoking!!! :) -
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Re: Hi Everybody
Tue, July 25, 2006 - 2:27 PMThat's insane giving you vicodens on an empty stomach tiffany. They should know better than that. What idiots. -
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Re: Hi Everybody
Tue, July 25, 2006 - 4:57 PM>>That's why I say- no smoking!!! :)<<
Thanks for the concern and that link you posted the other day Tiffany. You are a real jewel among my friends here at tribe. Thanks to you I am back on the patch, I'm trying to live, not kill myself - just needed a little reminding. -
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Re: Hi Everybody
Wed, July 26, 2006 - 10:23 AMIt is really hard to give up smoking Brock. I tried a thousand times before finally cracking it.
I don't honestly think I could have given it up while on treatment, I would have gone insane. I used the nicotine chewing gum and that worked wonderfully but then I was two years giving that up.
Good for you for trying to give it up.
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