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I'm updating the resource chapter of a book on hcv. Please let me know of any websites or organizations or books etc. that have been hepful, er, helpful, to you dealing with hcv and treatment, if you are or have been on it. All information welcome. Thanks guys.
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Re: Share Please
Thu, July 13, 2006 - 8:39 AMboy the internet is a quagmire of misinformation, as you know, I'm sure, I think its important to stick to the real medical sites with rare exception, these are a few I track.
www.cdc.gov/ncidod/disea...s/c/index.htm
hepatitis-central.com/
www.hepnet.com/hepc.html
nationalhepatitis-c.org/
www.hepc-connection.org/ - this one has a lot of good advocacy info, it is local to my state, most major communities have one like this
www.epidemic.org/ - this site is dr c everett koops, he quit his job as the surgeon general over 15 yrs ago due to the lack of attention paid to this by the government
he called it "the next up and coming medical disaster" -
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Re: Share Please
Thu, July 13, 2006 - 10:21 PMHeres the one that Lilac turned me on to even before she told me about tribe.
www.hepatitisneighborhood.com/
They usualy have a hepatologist moderated chat on Tues. night ( 7:00 pm my time- central)
then a bunch of people go to the other chat rooms and chat for awhile. -
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Re: Share Please
Sat, July 15, 2006 - 3:30 PMDuring treatment I joined this forum which was very helpful and supportive but ended up getting banned along with a bunch of others because the censorship was getting ridiculous. There was a lot of people on there into alternative medicine and herbal cures and if you were not into all that and opposed it, you were out.
www.ronmetcalfe.com
But it did help me to get through treatment and I'm still in touch with quite a few of them.
Tracey -
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Re: Share Please
Mon, July 17, 2006 - 5:56 PMalso see
laurascherer.spaces.msn.com/Pers....aspx
she has a great selection of books listed on her blog page -
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Re: Share Please
Mon, July 17, 2006 - 8:43 PMWhen I went searching there were hundreds of sites. First I wanted all the medical information, then I wanted to connect with others going through or have been though it. I can't add much to the list except this place.
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Re: Share Please
Tue, August 22, 2006 - 8:30 AMWell of course gotta add my own site, its on Delphi forums...webpage is at www.heppalace.net
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