Tribe.net. Local Connections Tracey http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#974f2f5e-1369-47b8-afed-6d2f7498d3f5 2008-07-26T15:44:52Z 2008-07-26T15:44:52Z

Hi Vicky I tried to carry on as normally as I could. Most days I made it to work, a few I had to take off sick. I don't know about the cardio exercise as I felt pretty short of breath on treatment, but you may be fine. Treatment affects everyone differently, some sail through with no problems, others get a few symptoms and for about 20% the effects can be quite severe. I found that the times of feeling not well would come and go. It is a good idea I think to get yourself as fit as possible before treatment. I wouldn't go losing any weight by cutting out fat and sugars as you may lose some on treatment.. I was scared and didn't know what to expect and was surprised when not much happened after the first dose. Try not to worry too much..all the best Tracey

Tracey 2008-07-26T15:44:52Z Vicky http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#5fbad1ca-0fbf-424c-b7e1-0d687196125d 2008-07-23T09:44:18Z 2008-07-23T09:44:15Z

I too am fixin to start treatment,and am scared. I do wonder how functional I will be from day to day. I.E. go to work, able to do cardio exercise, go to grocery store, etc Also should I clean myself out of sugars and fatty foods for a coup[le weeks prior to treatment? I am type a 1, and not sure how that will effect the outcome. I am so scared,

Vicky 2008-07-23T09:44:15Z Mike http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#cecae073-a174-44d1-ad08-2c26c7a141d0 2008-02-26T23:45:52Z 2008-02-26T23:45:52Z

Sounds like my experience each of the times I went through the treatment.

Mike 2008-02-26T23:45:52Z Tracey http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#88e27379-89cc-4f28-be04-c065145d34fb 2008-02-26T23:11:27Z 2008-02-26T23:11:27Z

I had no appetite at all, would get halfway through a meal and give up. I lost loads of weight, but it soon crept back on again and I ended up weighing exactly the same as I did before I started.

Tracey 2008-02-26T23:11:27Z Cosmic Love http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#ef79f156-fb30-461b-a51d-7f29fd69ac82 2008-02-26T04:52:57Z 2008-02-26T04:52:57Z

I could'nt even stand the smell of greasy shit cookin.

Cosmic Love 2008-02-26T04:52:57Z Marie http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#a690883a-0a0b-4f45-956d-4f227de021d2 2008-02-25T16:41:57Z 2008-02-25T16:41:57Z

fried food?

Marie 2008-02-25T16:41:57Z Cosmic Love http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#cc43052e-6a1d-4cb2-9308-a121a923a17a 2008-02-25T06:44:02Z 2008-02-25T06:44:02Z

I had sensitivity to light, red itchi scabby stuff at injection sites, rage (yelling at loved ones), fried foods...forget it, if it wuzzz'nt for smokin wacky tobbacy I'd have went nuts.

Cosmic Love 2008-02-25T06:44:02Z Marie http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#b851e03d-77bc-42dd-8296-5dfc0f0fd47a 2008-02-23T03:37:17Z 2008-02-23T03:37:17Z

My treatment itself wasn't that bad considering the big picture although I had the nausea and exhaustion. It gets easier once you relax into treatment (poor choice of words but I think you get what I mean) and then picks up near the end when you are just too damn tired or too damn crazy from the ribaviron. I wish you luck. Keep us posted on your good health progress!

Marie 2008-02-23T03:37:17Z Tracey http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#42e665c7-b905-49e3-b2e5-cfd812664815 2008-02-05T13:48:13Z 2008-02-05T13:48:13Z

Hi Josie I am/was geno 2 and did the 24 week treatment two years ago. Still undetectable. I had the virus for 25 years. I had symptoms like yours, though maybe not so severe. I had stomach pains, nausea, itching and was always tired. I think a lot of the symptoms can be down to liver damage and some down to the virus itself. The only symptoms I had in the early stages was tiredness and flu like feelings where the body was trying to get rid of the virus, the nausea, sickness and stomach pain, itching etc, came later when the liver started to get affected. I have never heard of Ursodoil, maybe it's not used in the UK. I found treatment harsh, but doable..My hair thinned, I was tired and cranky and lost a lot of weight, but the way I feel now; it was worth it. I have been in touch with many people who have been through treatment and it seems to affect everyone differently, you just never know how it's going to affect you. I must say though that it does help to be fairly well when you start, if you are weak and ill and emotionally unwell then it's not a good start. Some people have actually found they feel better on treatment than they do usually. You could remain on anti ds whilst on treatment, you may find that your dose has to be increased as treatment can make you lower than you would normally be. The good thing about geno two is the success rate. I don't know the figures over there, but here it's between 80 and 90% (depending on whose you're reading) The other plus is only six months of treatment. For me, it was worth it. I now have no symptoms and feel normal (as I'll ever be) Whatever you do...all the best. Tracey

Tracey 2008-02-05T13:48:13Z Josie http://hepatitisc.tribe.net/thread/6f69cd83-9a2e-4b40-8812-294903071cd2#3fafba00-d42c-4b49-b6d5-122ed03dad6b 2008-02-04T14:27:21Z 2008-02-04T14:27:21Z

I just got diagnosed with Hep C in the summer and found out I got it as an infant during a blood tranfusion in 1982. Problem is I didn't get tested until I was doubled over with abdomenal pain, nausea, tiredness, glucose fluctuation, intense weight loss, maddening itching on my legs and feet and loss of appetite. Even the smell of food made me sick. But I was told that it is highly irregular to get such sever symptoms with hep C and it was at frist thought of as just acute hep C. After 7 months, I wasn't getting any better so I got a biopsy. It showed I already had fibrosis and had better start treatment of peginterferon and ribavirin, but the the meantime I was given ursodiol. Has anyone else been given ursodiol? And about the treatment, I joined the In Charge program the peninterferon company gives us access to but it seems to commercialized and the testimonies neglect the side effects of the treatment. What can I expect? I have genotype 2 which is good, but my hep C symptoms are so life intruding that I am now on antidepressants and valium. Help!!

Josie 2008-02-04T14:27:21Z