Questions about side effects of peginterferon and ribavirin and basic Hep C....

topic posted Mon, February 4, 2008 - 6:27 AM by  Josie
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I just got diagnosed with Hep C in the summer and found out I got it as an infant during a blood tranfusion in 1982. Problem is I didn't get tested until I was doubled over with abdomenal pain, nausea, tiredness, glucose fluctuation, intense weight loss, maddening itching on my legs and feet and loss of appetite. Even the smell of food made me sick. But I was told that it is highly irregular to get such sever symptoms with hep C and it was at frist thought of as just acute hep C. After 7 months, I wasn't getting any better so I got a biopsy. It showed I already had fibrosis and had better start treatment of peginterferon and ribavirin, but the the meantime I was given ursodiol. Has anyone else been given ursodiol? And about the treatment, I joined the In Charge program the peninterferon company gives us access to but it seems to commercialized and the testimonies neglect the side effects of the treatment. What can I expect? I have genotype 2 which is good, but my hep C symptoms are so life intruding that I am now on antidepressants and valium. Help!!
posted by:
Josie
Pennsylvania
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  • I too am fixin to start treatment,and am scared. I do wonder how functional I will be from day to day. I.E. go to work, able to do cardio exercise, go to grocery store, etc Also should I clean myself out of sugars and fatty foods for a coup[le weeks prior to treatment? I am type a 1, and not sure how that will effect the outcome. I am so scared,
    • Hi Vicky
      I tried to carry on as normally as I could. Most days I made it to work, a few I had to take off sick.

      I don't know about the cardio exercise as I felt pretty short of breath on treatment, but you may be fine. Treatment affects everyone differently, some sail through with no problems, others get a few symptoms and for about 20% the effects can be quite severe.
      I found that the times of feeling not well would come and go.

      It is a good idea I think to get yourself as fit as possible before treatment. I wouldn't go losing any weight by cutting out fat and sugars as you may lose some on treatment..

      I was scared and didn't know what to expect and was surprised when not much happened after the first dose.

      Try not to worry too much..all the best

      Tracey

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