New to Hepatitis C need some advice pls on doctors/ treatment

topic posted Wed, January 31, 2007 - 3:16 PM by  Rbless
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Hi Folks,

I have recently been diagonosed with Hep C . Needless to say I was devastated and as I gradually began to accept it I found this wonderful community and am hoping to gain from you all.

I am 32 yr old in the SFO bay area. about 3-4 months ago I found out during routine tests that I have Hep C. probably contacted it some years back during some fertility treatment ...Trying to concieve since last 5 yrs now and undergone ivf unsuccesfully too to achieve the joy of a baby ..


My genome is 3 and viral count was 3 million as per my last test in september. I am looking for soem advice on a good hepatalogist in bay area. I saw Dr Joanne Imperial and found her quite ok... any other good docs in the area ?

We are also planning to give one last shot to IVF for a baby and not sure which one to choose first IVF / HEP C treatment.... pls advice ..

I am so scareed of the side effects and scarred to loose my hair ??

thanks and good luck to you all !!

Rbless
posted by:
Rbless
SF Bay Area
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  • I just asked how you were but never noticed your post underneath.

    I don't know if you'd have 24 or 48 weeks treatment? I know they sometimes give 48 weeks to geno 3s now. I'm not sure but I think it's six months you have to wait after treatment to try to concieve. If you haven't had hep that long and there was no damage and you feel ok, you could try for a baby first but there is a very small chance you could pass it on in childbirth. 2% so I've heard. I have three children that I had whilst infected and they are all clear.
    The only other thing that pops to mind is that if you do have a baby it might be hard work looking after it if you feel rough on the treatment.

    Your only 32 though, so you have time.. By the way, my hair didn't all fall out..just got thin.

    All the best

    Tracey
  • Hi...I also have resently been diagnosed with Hep C...Thye think I've carried it for years...Also was sent to Dr.Imperial...I go back next week to discuss treatment. Then I'll find out damage...Pretty scared though at outcome.I have a very good frien over in Felton who I've know since high school.She has worked for years with hep C patients and thinks I should try alternative treatments...Kinda confused hearing from western medical ideals and those folks on the holistic herbal side.
    • Hi Chris

      I can understand you feeling like that and I can remember feeling pretty scared at the outcome. I really wish there was an alternative treatment I looked into it because I didn't fancy pumping my body full of toxic chemicals for six months. I decided to go with the treatment because it was the only thing proven to work and when I found out I had geno 2 which only needed 24 weeks I just went for it and thought I'd be kind to my body afterward.
      For me, the treatment was not too bad but I know it's different for everyone. If you have little or no liver damage you could wait for the new treatments that are in the pipeline that are much less harsh on the body than interferon/ribavirin therapy.
      Hope the test results go well..all the best.

      Tracey
  • Hi... I can't help you with the doctor in your area, but it is my understanding that if you plan to have a child it should be done prior to treatment. My doctors told me that the treatment will have an adverse effect on the eggs and increase the possiblility of problems. I would discuss this with your doctor.

    My doctor advised me to NOT get pregnant after treatment... well I'm almost 46, so I don't think that was in the plan anyway... LOL

    Wishing you the best... keep you chin up and above all else...

    KEEP SMILING,
    Tonjha
    • Yeah.. I wouldnt trust eggs after treatment, you never know what the interfuron might do to them. I vote have your baby before treatment.
      • Have you had a biopsi yet Chris?
        • Breathe. Life doesn't end with the diagnosis. Sorry to meet you here, but here is alot of support. It's scary, but it is a long term gig so you aren't going to die tomorrow. Sorry to be so blunt but I think it's important to remember that, and to hear that there are so many current, and in clinical trials, treatments now, that you're situation is not as bad as you may perceive it to be. I had 3 with a viral of millions and I cleared the virus. Being in the bay area means that you are able to go to the best hcv center in america - cpmc. The doctors do clinic throughout California. In Sunnyvale there is a support group that meets, if I remember correctly, on Sunday nights. In SF cpmc has a group that meets twice a month and Quan Yin has a group that meetings twice a month so there is weekly support. If you want any of this info, em me.

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