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First I want to thank everyone for your support!! What are your opinions/expierences of working while going throught this terrible treatment. Just curious...........................
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Re: Working during treatment
Mon, March 13, 2006 - 2:22 PMI was about your age last time i did treatment, though not entirely sure age matters a bit. I worked through treatement. single parented, ran a house, as have so many others i know. No doubt it was not easy, but most get through it. I believe most of us here worked through treatment, mine doesn't count this time, I am blessed enough to work from home this time.
Wish I could tell you how its going to be for you, but the one thing you will find is the more people you communicate with that have been through this the more varied the reactions will be. I think its largely because Interferon is a naturally occuring enzyme in the body that it reacts so differently with each person.
The gargoyle eggs, (ribavirin) are a different animal all together. The side effects are pretty universal, but largely managable.
The best you can do is just get through each day, one at a time. Don't set yourself up for too many expectations, don't put too many demands on yourself, and exhale a lot. Get some regular excercise, nothing too demanding. If you meditate or do you or any relaxation stay with it. Stay hydrated and keep eating no matter how odd everything tastes, you will fare pretty well.
Also get as much rest as you need, no matter what it takes.
That dirty old dragon is not invincible, you go get em' girl, we have a pretty darn good cheering committe here any time you need us.
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Re: Working during treatment
Mon, March 13, 2006 - 7:02 PMI did treatment in 2001 and worked throughout. It was very hard for me but I did for 48 weeks so its possible. Treatment is different for everyone. With me I was very nauseous, dizzy, and then there is the Riba rage, but I got through it. If I had a choice I would have slept through the whole thing, but I needed to work so the health insurance would pay for the treatment. Some days were not as hard as others. I wish you the best. Would like to hear how it's going.
Take care
Jeanmarie -
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Re: Working during treatment
Mon, March 13, 2006 - 11:28 PMI finished 48 wks of tx recently and worked through so the nightmare is still fresh. Riba Rage, what a great expression and oh so true. I told one particularly odious woman that she was acting like a screaming harpy. It was ok, me tough cookie, until the last 6-8 weeks. The hardest part of the entire experience was not dealing with the physical or mental symptoms while working, though brain fog is certainly challenging, but dealing with the stigma and reprecussions that ensued and that haven't ended yet. Someone did it just today. Regardless, for me, I made the right decision. It would have been no good very bad not helpful at all for me to not work during treatment. It was important, necessary even, for my head and heart, to be out in the world and not all alone in the dark in my flat nibbling on a crust of bread and drafting suicide notes.
This tribe helped me tremendously with going through tx, people here just laugh over brain fog or smpathize over brain fog, but never patronize or minimize. If you work or not, keep the communication coming, we're here for you.
Jeanmarie, how are you doing? Give me some good news, I'm only about a month off tx so I don't have my 3 month test yet.
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Re: Working during treatment
Tue, March 14, 2006 - 9:01 AMThank you all for your reply's and support.. I am working through treatment, going to school and trying to still be mommy. But man it's getting harder and hader... The ribarage made me invision hitting my boss in the you know where with a baseball bat and then telling him "now YOU try to get out of bed, go to work AND do it with a smile" But the thought of possible jail time kept me from doing it. Sometimes I need to call off but he's giving me a really hard time especially cause it's tax season, and I understand his point BUT it would be really nice if he could try to understand as well. But like most of you I HAVE to work, not only to support my family but the health insurance as well. I do agree though that keeping busy is best, if not I'd just sit at home all depressed, best to keep the mind as busy as possible just my body doesn't want to keep up.... But you all know that better than anyone!! -
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Re: Working during treatment
Tue, March 14, 2006 - 5:14 PMI'm with you. During flu season when everyone was whining because they had a lingering cold, i.e., down for 2 days, coughing for another 10, whining, like they were dying of cancer, to ME and expecting sympathy from me, which they got because they are idiots. Oh, did I say that out loud? Sorry, I meant, they are ignorant, er, I meant, naive, er, lucky that they don't have a clue as to what really being sick is like. Yes, Bev had another lovely day at the office. Good work Tiffany, I truly understand your feelings. -
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Unsu...
Re: Working during treatment
Mon, April 24, 2006 - 12:30 PMHey Tiffany,
I just finished my 48 weeks, working the whole time. Sure it was not easy, all I could do after work was: nothing!
But my friends and my sister were of great help. So: demand their support, that's what freinds are for, lalala....
And I tried to do different things: meet friends for diner - instead of clubbing, visiting friends - instead of doing
vacational trips, goind to the cinema - instead of cruising through the night.
Wish you all the best :-)
Thomas -
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Re: Working during treatment
Mon, April 24, 2006 - 5:24 PMWow Thomas, you did great.
Tiffany, I made it through working the whole 48 weeks but did it by doing what was necessary and letting the other stuff go thinking I would finish treatment and catch up. I'm two months off treatment, still haven't caught up and am still too tired to work on the weekends to do so so I'm kind of in a messy situation. I don't know how you can be a mommy, work and school, you get gold star of the day. -
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Re: Working during treatment
Mon, April 24, 2006 - 5:56 PMHey Tiffany I worked through treatment the first two times but by the time I got to the third I had to go on disability, it's not easy but it can be done if necessary...... -
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Re: Working during treatment
Tue, April 25, 2006 - 6:49 PMI set my palm to beep at noon every day with the message NEUTRAL to remind me that I should chill my riba rage if it was going on. Mike is right, we do what we have to do! -
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Re: Working during treatment
Mon, May 22, 2006 - 2:31 PMI worked part time through treatment. I cut down to three days a week. My job involves a lot of driving and selling as I'm a rep. I was really tired sometimes but work kept me focused and took my mind off how bad I felt. I just used to tank up on painkillers and get on with it.
I liked the three day week so much that I'm still on it now. Riba rage was a problem sometimes but being a bit more assertive (good way of putting it) got some surprising results.
Tracey -
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Re: Working during treatment
Mon, May 22, 2006 - 5:40 PMTracey, I told a client (sort of) that she was acting like a screaming harpy. ~whining - but she was a little tiny dark with deep circles new york bitch and she looked like, me, er, like a screaming harpy ~ Riba rage. Worst part of the whole experience. -
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Re: Working during treatment
Tue, May 23, 2006 - 12:36 AM"Screaming harpy'" I like that expression Beverly. Yes, the screaming harpy's! I kept it together with clients but the times I got back into my car and beat up the streering wheel or burst into tears. I also found I got occasions of madness too. I remember the day I walked into our little shop and went to pay for my paper and this earwig fell out my purse, it was huge and ran all over the counter! I could not stop laughing, really laughing, loudly and insanely. No one else was, they just sort of looked at me. I got back into my car and cried.
That one sticks in my memory but yeah, PMT but amplified.
Tracey -
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Re: Working during treatment
Tue, May 23, 2006 - 6:23 AMJust wanted to let everyone know that I have finally decided that it is time to take advantage of the disability insurance that I have paid on for the past few years.
All in all the side effects have been fairly mild... the med crazies... well truthfully... I'm so crazy anyway that nobody really noticed.... LOL
Its the weight loss thing that is getting to me. I'm down to only 102 lbs and am on a med dose for a person who is 160 lbs. So, I now have a choice.... lower the meds (and the chances for a cure), or take some time off work and take care of myself.... so that I can pick up some weight.
Truth is, I'm looking forward to the chance to take care of ME.... (wink)
My thoughts are.... work as long as possible, but never feel bad about doing what ever it take to slay this dragon.
Hugs,
Tonjha -
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Re: Working during treatment
Tue, May 23, 2006 - 7:07 AMHi Tonjha
I lost 16lbs in the first six weeks of treatment and I thought 'Whoopee! but to be honest I looked terrible. Clothes were hanging off and I aged about 10 years. The weight loss did slow down during treatment and I can't quite believe how quick it's piled back on after! I'm now back to my original weight without even trying to pork up. I found that small snacks worked better for me, big meals were too much and a just put me off but little, tasty, nutritious or sometimes not so nutritious snacks worked well.
At what stage of treatment are you at? I don't think I could have worked full time. I did have quite a lot of time off and had to plead with my boss to cut my hours. I agree, do whatever it takes to slay the dragon. I think you have to think of yourself and do whatever you feel is going to help.
My sides were not to bad, headaches were the worst.
Take care
Tracey -
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Re: Working during treatment
Tue, May 23, 2006 - 8:37 AMTracey,
I just took shot #15 last Friday, and feel very lucky that I have not had a lot of the side effects.
I try to eat the small meals, but it is hard to have something always handy at work.... or at least something that I can choke down.... LOL
I've lost a total of 15 lbs over the past 15 weeks. It seams that I can carry my weight fairly well for a short time, but once a month (LOL)... I get sick a loose about 3 lbs overnight.
Hopefully over the next 13 wks I will be able to force enough food down to at least gain back 10 of the 15 lbs that I've lost.
Thanks for the support.... and welcome.
Tonjha
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Re: Working during treatment
Tue, May 23, 2006 - 8:40 AM>>Just wanted to let everyone know that I have finally decided that it is time to take advantage of the disability insurance that I have paid on for the past few years.<<
Good for you Tonjha! Eat lot of veggie pizzas w/ lots of fattening cheese. And drink alot of milkshakes. You need to gain alot of weight girl. Meditate on that for awhile.
Love Ya,
Brock -
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Re: Working during treatment
Tue, May 23, 2006 - 8:45 AMHey Brockie....
What's up Babe?
OMMMMMMM.... Chocolate Malts.... OMMMMMMM.... Pizza.... YUMMMMM (Oops... OMMMMMM... LOL)
Great meditation... thanks for the tip... and the SMILE.
Hugs and Big Smiles,
Tonjha
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Re: Working during treatment
Tue, May 23, 2006 - 8:47 AMWelcome to the tribe Tracey, you are one of my heros. I lost count but I think I'm on about week 35 or 36 of treatment ( I'm geno 1a). I wasnt clear yet at 24 weeks, but I sure as hell hope I am by now. I dont know when my next viral count test is.
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Re: Working during treatment
Tue, May 23, 2006 - 11:23 AMGOOD for you!!!! Now that the Dr. has taken me off the treatment I have been able to look back and see what damage the 12 weeks did to me both physically and mentally. It is very gradual and you don;t get to see the real effect of it till after, REALLY!!! I had lost 13lbs during the 12 weeks and I was only 118 to begin with. My skin started hanging off me, my hair was coming out, I lost muscle tone and lacked any strength, etc...., But I don;t have to tel you this, you know. I truly believe that while trying to work full time and do treatment does effect the way your body reacts to the treatment. I forced myself out of bed everyday saying to myself "come on you wimp, get up and just face it" only to realize that this did more damage the any good....I got so ill I ended up close to death and was forced to stop treatment. I was also on the max med dose and like you said we are only 100lbs yet we get the same dose has someone 60lbs heavier, that just doesn't seem right to me............I am so happy you are putting you and your health first Tonjha !!! -
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Re: Working during treatment
Tue, May 23, 2006 - 11:46 AMHi Tiffany,
Yes it seams a little odd for the Dr's to put us on a dosage way too high for our body weight... knowing that we will loose weight on treatment. Then they tell you that if the dosage is reduced after you achieve Non-Detectable... that your chances for a complete cure drops dramatically.
I became Non-Detect at around 5 weeks of treatment.... that really jumped my chances for a complete cure... and I'm just not willing to give up those extra percentage points, just because I have become the amazing disappearing woman... LOL... I'm not sure if I fall into the waife or pixie catagory at this point, but it's one or the other..... LOL...LOL
This is one time in my life where I will gladly put my needs ahead of all else.... I can always go back to putting others first.... after this is all over with.... SMILES.
Hugs,
Tonjha -
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Re: Working during treatment
Tue, May 23, 2006 - 1:33 PMHi Brock
You mean your not counting! I have nothing but respect for anyone doing 48 weeks. I found that treatment was just starting to bite at 24 weeks. Did you all find your hair was falling out. I'm told now that my hair was so thin you could see my scalp through it (shining through!) It does grow back quickly, bit like the weight going back on.
Tiffany, you sound like you've had an awful time. I can remember waking in the morning and feeling like I was glued to the bed and that my eyes were glued together. Forcing yourself to work cannot be a good thing.
Tracey -
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Re: Working during treatment
Tue, May 23, 2006 - 8:24 PMI'm with you Tracey, I can't believe Brock isn't counting. Maybe it is the brain fog.
~knock knock - you in there brock? ~
Sounds like you made a good decision Tonja.
Although, I hate you all because I gained weight on treatment. -
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Re: Working during treatment
Wed, May 24, 2006 - 8:57 AMIve been counting, but I have alot on my mind, so I temporarily lost track, I'll try to remember to call the nurse and ask her what week I'm on. Brain fog hasnt been a problem lately, I think all the pots finaly cleared out of my system and I can think again. The biggest problem I have is being too sensitive and letting what other people are doing bother me. I was never like this before treatment and I hope I never am again. -
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Re: Working during treatment
Wed, May 24, 2006 - 9:16 AMI'm sure you'll return to normal Brock, I did (is that a good thing?) I think it takes a good few months to get the meds out of your system afterwards.
I was pretty sensitive too, things that would usually go over my head became important issues. It will go, believe me.
Tracey -
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Re: Working during treatment
Thu, May 25, 2006 - 6:46 PMits funny I seem to be just the opposite, all sorts of things I used to get worked up about I have not the energy to even care about any more. mostly just drifting around in a fog, my daughter thinks its hysterical. -
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Re: Working during treatment
Thu, May 25, 2006 - 6:56 PMYep.... we've all been through the insane med moments.....and fog... LOL
I have to admit that a big part of the decision to take leave, was the morning fogs.... followed by the after lunch need for a nap... lol
Then by the end of the day... there is nothing left emotionally, to deal with the family stuff... and the need for another nap.... LOL
Well, time for the evening MiniDose... so, have a good one.
Hugs,
T -
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Re: Working during treatment
Thu, May 25, 2006 - 7:35 PMBeing a mood swing queen, I've had the 'oh the dog looked at me funny so I need to slit my wrists' moments to the 'who cares that that car hit mine and the guy doesn't have insurance'. -
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Re: Working during treatment
Thu, May 25, 2006 - 7:49 PMOh good... there's something to look forward to.... LOL
I've had the cat looked at me funny thing.... except I thought about launching the cat... now that's bad for an animal lover.... I thought it could not get any better than that.
Now I have the 'who cares that that car hit mine and the guy doesn't have insurance'... to look forward to.... LOL
Welcome to our world.... wink... I think someone else on the tribe once said "It one hell of a ride... so hold on"..... Hey, where is Stan anyway?..... LOL
Smiles,
t -
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Re: Working during treatment
Thu, May 25, 2006 - 11:42 PMT,
I'm right here and reading every post. As we all know, HCV and treatment is so very different for everyone. It turns out dance is the *cure* fore me. My last liver biopsy looks better than it did ten years ago and my viral count is low and stable. I'm in the studio five hours a day. At 58 and I'm kicking the 20 and 30-something-year-olds butts. It's has in deed been a "long stange trip."
S -
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Re: Working during treatment
Fri, May 26, 2006 - 12:22 AMI agree, I think treatment is different for everyone. I only know one non virtual person who's done the combo treatment and they spent six months in a stupor and felt like they had flu the whole time. It's so weird. One minute there's nothing wrong with you, next thing your on this strange, toxic rollercoaster ride you then get off and think ' What happened!!?'
I can remember just wishing everyone would go away when the riba bit, couldn't stand people around me, or cats. Funny Beverly with the guy hitting your car with no insurance anology? It reminds me of how I drove like a maniac and had 2 speed fines when on treatment. I drive around like a granny of a hundred now, one more and they take your license away (with that would go the job, the house, life as I know it)
The stigma that goes with it should never be. There's a definite lack of awareness.
Wow!! Stanton (hello, by the way) what an energetic lady! Good for you, glad you can do it.
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Re: Working during treatment
Fri, May 26, 2006 - 9:00 AMOh! So you are!! Sorry Stanton.
Ok, Your a vey energetic guy, good for you!!
Tracey -
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Re: Working during treatment
Fri, May 26, 2006 - 10:38 AMHey.... there's my buddy Stan.... what's up?
Tracey... Stan may be all into shoes and dancing.... but he is ""The Man"... LOL
He also has a great since of humor... so I'm sure he got a big laugh over that one... or perhaps he thought about dating himself.... LOL... just joking Stan!
Hugs All,
T -
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Re: Working during treatment
Fri, May 26, 2006 - 11:21 AMT,
Don't date. Never have. Never will. However, you can find me at the Spotlight dance studio in Sacramento just about every day from 4 pm until ? Get this, there is almost always more guys than gals. So drop by.
S. -
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Re: Working during treatment
Fri, May 26, 2006 - 11:27 AMHey Stan,
It's a bit of a drive from Indy, but the next time I'm in Sacramento.... I'll make sure and stop by the dance studio. Maybe I can help to even up the ratio.... LOL
Smiles,
t
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