Hello

topic posted Mon, May 22, 2006 - 8:07 AM by  Tracey
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Hi Eveyone
I have just finished a six month course of combo therapy for hep c, geno 2 and am now almost six months post treatment. My three month pcr was negative and my six month pcr is in july.

Just wanted to introduce myself really.

Tracey
posted by:
Tracey
United Kingdom
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  • Re: Hello

    Mon, May 22, 2006 - 8:22 AM
    Welcome Tracey,

    Congrats on your test results and you have come to the right place for support.

    This is a very special tribe, the members always here with a smile, some advice... or just a shoulder to lean on.

    Hugs,
    Tonjha
    • Re: Hello

      Mon, May 22, 2006 - 2:20 PM
      Hi
      Thanks for the welcome Tonjha. Seems a friendly place.

      Tracey
      • Re: Hello

        Mon, May 22, 2006 - 5:33 PM
        How on earth could you not use all caps to let us know that you are non-detectible?!?!?!?

        Welcome to this tribe. I find that many of us are whacked so if you are a bit off kilter, you'll fit right in. ha ha. There is lots of positive energy here and the people have been great towards me all through treatment and after. Glad to have you join us.

        A friend today just got the results that her first tma after 4 months for c2, detecible. She is devastated.
        • Re: Hello

          Tue, May 23, 2006 - 12:22 AM
          Beverly, I am new and I didn't want to shout! HA! I was ecstatic to be non detectable at three months and I sort of convinced myself that I had 'Done it' even my nurse said that though six months was the official 'clear' it was unlikely to come back. Here I am now, starting to get wound up about my six month test!
          So sorry to hear about your friend, bad news! Is c2-geno 2? if so, she's very unlucky.

          I must go back through the threads and see where you are all at.
          • Re: Hello

            Wed, May 24, 2006 - 11:15 PM
            I'm 3e and when my 3 months came back nd, the doc said that my odds, which were about 65% going in, are now at 95-97% of clearing the virus. I'm doing the same thing, I've convinced myself that I'm just gonna stay clear.

            The numbers 1, 2 and 3 etc. are the genotypes. No. 1 is hardest to clear is what I've heard but every situation is different.

            So, do you feel better yet? Riba rage all gone? I can still get mad in a ny minute.
            • Re: Hello

              Thu, May 25, 2006 - 9:42 AM
              Beverly, I do feel a bit better. I thought (foolishly) that the minute the last riba hit the deck I would start to feel better, not so! Seems to take a time for the meds to get out of the system.

              Still get a bit of riba rage but nothing like when on treatment. I notice Brock got the migraines, that was my worst side, used to get about three a week and they floored me. Doc prescribed tramadol and that helped. I notice your migraines got better!

              Strange stuff eh?

              How are you feeling now, apart from the riba rage?
              95-97% I like the sound of that!
              • Re: Hello

                Thu, May 25, 2006 - 1:53 PM
                I got rid of the migraines by using a C-Pap (breathing machine) while I sleep. Appears my sleep apnea is what was giving me the migraines.
                • Re: Hello

                  Thu, May 25, 2006 - 6:43 PM
                  wow, I have been drifting in the mist for awhile haven't I. Welcome Tracy, WOOO, HOOO, another success story. So glad to have you join us. I am in week 19 of tx and just a wee bit squishy but glad to welcome a newbie..
                  • This is the maximum depth. Additional responses will not be threaded.

                    Re: Hello

                    Fri, May 26, 2006 - 1:26 AM
                    Hi Sher
                    Are you a 24 or 48 weeker? Sorry your feeling 'Squishy' I remember 'Squishy' well. I found the brain fog was one of the first things that went after stopping, then realized I hadn't opened any post for months.
                    Great to meet you...
                    • Re: Hello

                      Sat, May 27, 2006 - 6:47 PM
                      I am a 48 weeker Tracy, just call it the lost yr, don't mind the squishy so much, I am relatively entertaining most days, wobbling around in circles. This is my second round in 7 yrs so knew mostly what I was in for but Pegasys is a slightly different animal than the peg intron I did last time. Also last time they kicked me off at 12 weeks so I had not made it this far, as you can see my shaved head was the result of hitting, oh week, hell I don't know, but far enough in to be done with trying to groom increasingly thinning hair.

                      Wow, Bev what a wonderful opportunity for you, go for it girl...
                      • Re: Hello

                        Sun, May 28, 2006 - 1:26 PM
                        Sher, your hair looks great like that, suits you. Looks a lot better than thin strands with bits of shiny scalp peepin through.

                        Do you find the pegasys kinder than the peg intron? not that any of them can be described as kind!
                        Tracey
                        • Re: Hello

                          Sun, May 28, 2006 - 3:20 PM
                          <<Do you find the pegasys kinder than the peg intron? not that any of them can be described as kind! >>

                          6 of one 1/2 dozen of the other. I think really the pegasys, once a week, is just more consistent so you tend to get used to it sooner. Also as I said I never made it this far
                          last time so what I think are new symptoms I didn't have before are symptoms that just
                          took this long to manifest.

                          I just try to keep a sense of humor about it all and when I can't laugh at myself, someone else surely does, God bless friends, lol....

                          Just today, I wore out carrying laundry up/down the stairs and sat down and took a nap on the center stair riser, my daughter laughed so hard she nearly peed her pants upon finding me out cold on a pile of laundry with 2 cats piled on top of me.

                          oooh, the adventures
                          • Re: Hello

                            Sun, May 28, 2006 - 4:59 PM
                            I've heard pegasys is a little "kinder" than pegintron, but insurance will only cover pegintron. I don't get the "nice" stuff till I've been on Pegintron for 6 mo. and have to of had no response, so we already know if I decide to continue on I'll HAVE to stick with the "cheap one" lol
                          • Re: Hello

                            Wed, May 31, 2006 - 12:04 AM
                            That reminds me Sher, I was making the beds once on a very bad day, I just gave up lay down on it and flaked out in the middle of a heap of sheets, duvet and pillows and there I was found hours later.....When you gotta go...you gotta go..
                            • Re: Hello

                              Fri, June 2, 2006 - 3:29 PM
                              No doubt Tracy, heck I am convinced I could sleep standing up. The pisser is I sleep much better during the day than at night, now if I could just convince my employeer to shift the whole company to night owl mode I would be just fabulous...
  • Re: Hello

    Tue, May 23, 2006 - 11:11 AM
    Hi Tracey and welcome!! I just joined this tribe a few months ago and have found it to be very helpful and have made some wonderful friends. CONGRATS on your results!!! And keep posting, the more the merrier!! Tiffany
    • Re: Hello

      Wed, May 24, 2006 - 2:56 PM
      Hi Tiffany
      Thanks for the congrats. Good to have some others to share it with. I read that you've been taken off treatment for now-sorry to hear that
      Thanks for the welcome

      Tracey
      • Re: Hello

        Thu, May 25, 2006 - 7:31 PM
        I think it was Tiffany that came up with riba rage. I instantly stole it. Instantly.

        So, I've been asked to talk to some medical students in an hcv seminar about the psychology issues while on interferon. I'm not sure if I've been insulted or complimented! What should I tell them guys? brain fog, riba rage, mood swing every 27 seconds. ? What do you think mds should do in the arena?
        • Re: Hello

          Fri, May 26, 2006 - 1:32 AM
          Or is it Interferon insanity? I often wondered? taking two drugs at the same time. Bit of both maybe.

          That is so brave to talk to the med students Beverly. My nurse warned me I might feel a little 'down' and a little irritable but she never said I'd become a screaming harpy! ( I have stolen that one, instantly, I love it!) It's an emotional rollercoaster, good luck with the talk!
        • Re: Hello

          Fri, May 26, 2006 - 7:58 AM
          I think it's a great idea for you to speak with them. There is such a stigma attached to Hep C especially in the Medical Community!!! I think that whatever we can do to educate them we should try because so many are not understanding at all!! After the last nasty trip to the ER I spoke with a friend who works at the hospital and she said that chemo patients are given masks when being seen at the er because there immune system is compromised and that Interferon pt's should be treated the same way!! But their not, people just don't get it!! I can't tell you how many times I've actually had to explain to a nurse what interferon is!!!!!As for the psycology issues... Well if you decide to speak to them tell them not to just brush off what people on treatment are saying and be very sensitive to the seriousness of what it does to you. Depression one minute, anger the next, then hysterical laughter, etc...... I felt very isolated on treatment even though I wasn't alone. I 'd just spill my guts to them...................... Let it all hang out girlfriend!!

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