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Figured it was about time to post something in veiw of my semi hiatus and current condition. As many of you know I am awaiting a liver transplant, well in the past week my ascites and edema is no longer controlable by the meds I was on, this after increasing the dosage four fold. I was told my Bellirueban count is way up and I might show signs of yellowish skin and eyes soon (attractive huh?) I seem to be throwing up every several days and my nusea level has risen to a noticable point. On top of this I can barely eat because of he bloating and if I eat a little too much I throw up (beleive me I am eating very tiny portions but even those are too much sometimes. I also am having problems defecating properly and my platlet count is down.
I am told that this is related to either my liver not secreating properly and/or blood not flowing through my circulatory system properly. They are still figuring out how they want to attack this, I know part of it is they need to stimulate the different parts to get a proper flow going...
Anyway good to be back here...
I am told that this is related to either my liver not secreating properly and/or blood not flowing through my circulatory system properly. They are still figuring out how they want to attack this, I know part of it is they need to stimulate the different parts to get a proper flow going...
Anyway good to be back here...
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Re: I'm back
Tue, June 27, 2006 - 7:29 PMI would much rather that you were on hiatus because you were feeling good.
Next time you throw up, picture someone you hate and imagine it is in their bed. Ha ha. -
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Re: I'm back
Wed, June 28, 2006 - 7:55 PMThanks Brock, it's appreciated. Still feeling like crap, more labs tommorrow. Meanwhile my regular Doctor is jumping all over the Transplant Center, she thinks they are treating me like a street junkie, now my specialist is also giving the Transplant Center a hard time because the last time I went they said come back in a year, she feels they should see me every six months. I'm so lucky to have two great Drs. advocating for me.
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Re: I'm back
Fri, June 30, 2006 - 1:55 PMDon't you wish you could just tell them all to F*** off and that there billion years and money spent in med school didn't teach 'em S***! -
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Re: I'm back
Fri, June 30, 2006 - 2:24 PMMy doc actually said to me "Just be careful not to get re-infected" That made me mad and I said where could I get re-infected from? you? -
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Re: I'm back
Fri, June 30, 2006 - 3:52 PMI recently read about the infamous pig woman who testified a murder trial in victorian england. An ancestor Tracey? Joking! Love the avatar.
How are you holding up Mike? I have heard mucho mucho bad stories about kaiser and never one good one, so I hope you will be the good one.
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Re: I'm back
Thu, July 6, 2006 - 9:00 PMI think people like to slam Kaiser for the way they did medical treatment in the ppast long long ago. The way it is now is just like private insurance you can go through the GPs til you find one you like. I had some bad experiences with CPMC and the GPs affiliated. -
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Re: I'm back
Fri, July 7, 2006 - 8:08 AMGlad to hear that you have two good MD's going to bat for you Mike. -
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Re: I'm back
Sat, July 8, 2006 - 10:02 AMMike, I'm a bit frustrated at the way I percieve the way Kaiser is treating you. What do I know though, sorry for judging, I'm sure that your confidence is well placed. -
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Re: I'm back
Sat, July 8, 2006 - 9:11 PMI'm feeling a bit better, when I see my Hepatlogist I am going to demand anti nusea meds and something other than oxycodone since the liver surgeon is treating me like a street hype and tells me if the oxycodone winds up in my blood stream I will be pulled from the list for a year I use pain meds so rarely, I tend to tough it out so I have to be in real pain. I was that way when I could take over the counter meds. The chronic pain specialist recommended tramadol and my hepatoligis took the recommendation to UCSF (transplant center and arrogant liver surgeon) we have yet to here from the jerkogg so I am going to get my hepatoligist to light a fire under his and get an answer. Apparently since I can't take over the counter meds I suppose I am supposed to suffer. since I don't beleive in self flagellation and ain't Jeaseus Chrisr I wabt some releif......btw still more bloared then I should be, still very very weak and tired when will this all end? -
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This is the maximum depth. Additional responses will not be threaded.
Re: I'm back
Sun, July 9, 2006 - 8:40 PMAw Mike, that sucks. It will end. I promise. Me, and I have influence, I promise. Ok, I don't have influence, but I do have intuition and it tells me that your present difficulties will be addressed in a positive way and soon. Then you can get back to which kind of squash being the big decision of the day. I imagine that it must be a pain all the more because of the pain meds and the stuff that goes around that re: transplant list, etc. I had a migraine that lasted for 3 months. In desperation I went to see an old chinese lady who didn't speak english in chinatown who stuck needles that had to be six inches long all over my face and head and body. 3 months, I was desperate and it was only pain, I cannot even imagine how you are suffering. Hang in there Mike just a little longer until this gets settled out.
If you need pointers on how to be a pain in the bazooka, let me know. I have lots of practice. -
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Re: I'm back
Sun, July 9, 2006 - 8:43 PMWho is the md? The ALF is doing a summer series and there is one on Tuesday I'm going to with Ralphael Merriman, Nathan Bass and Sandy Feng, all from usf. NASH/Fatty Liver & Nuitrition, Liver Transplant & Living Donor related. I can be a pain in the bazooka for you. -
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Re: I'm back
Sun, July 9, 2006 - 9:02 PMWell small world the transplant surgeon is Nathan Bass...go figure. -
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Re: I'm back
Mon, July 10, 2006 - 10:47 AMHe sounds like he works for Bass Pro Shops. -
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Re: I'm back
Mon, July 10, 2006 - 10:21 PMUgh, now I don't want to go. well, I'll give him the evil eye.
When I saw my old gastrologist who I had been seeing every two years to monitor my hep, I went into his office and he looked at me and said, now, how can I help you miss? That's right, didn't even remember I was his patient. I don't know if you can tell friends, but I tend to be remembered, often not in a good way, but still, I went to him for years, biopsy and everything. I still hate him. -
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Re: I'm back
Tue, July 11, 2006 - 12:17 AMHe actually is very good at what he does, although one on one with me he is condesending . One of the things,actually the major thing rhar upsets me about him is e doesn't take the pain I gave to endure sometimes seriously, in fact he refered to some of the problems I get as "vague" there ain't nothing vague about sometumes it's damn painful... -
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Re: I'm back
Tue, July 11, 2006 - 9:08 PMI've heard that also. So now when I go in I have very specific comments. Now I am treated like a hypochondriac, because why else would I pay so much attention...
Can't win for losing.
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